PHARMA PATIENT ACCESS WORLD CONGRESS 2025 EUROPE
Improving Patient Access for Better Health Outcomes and Quality of Life
Copthorne Tara Hotel London Kensington, London, UK, London, United Kingdom
Wednesday 11th - Thursday 12th June 2025
KEY INDUSTRY EXPERT SPEAKERS 2025
- Robert Mitchell-Thain, CEO, PBC Foundation
- Carole Scrafton, Director & Co-Founder, Flutters and Strutters
- Josie Godfrey, Co-Founder and CEO, Realise Advocacy
- Lindsay Birrell, Co-CEO, Realise Advocacy
- And much much more...

JOSIE GODFREY
Director, JG Zebra Consulting, Co-Founder and CEO
>Strategic Director, Project HERCULES >Director, JG Zebra Consulting >Former Associate Director, NICE (Highly Specialised Technologies and Topic Selection) >Former Head of Policy, NHS National Specialised Commissioning >International Policy and Patient Advocacy, Sobi

LINDSAY BIRRELL
Co- CEO, Realise Advocacy, Chair of trustees
Former CEO of Metabolic Support UK >Chair of trustees at Medics 4 Rare Diseases. >Former member NHS England Metabolic Clinical Reference Group >Patient Advocacy Group experience of UK routes to access >PPV rep on NHSEi Rare disease Advisory Group

CAROLE SCRAFTON
CEO & Co-Founder Patient Advocacy Organisation
Carole is a patient with chronic and genetic rare disease, Patient Partner, Expert Patient, Patient Speaker, Author and Researcher. She is the CEO & Co-founder of FibroFlutters Patient Advocacy Organisation for chronic / rare illnesses. Helping to develop, nurture and advocate for a multidisciplinary approach to all aspects of medical healthcare so that chronic illness & rare disease patients can receive the type of care and treatments that they need. Carole utilises varying social media platforms to support people with Chronic illness & Rare Disease, #notjustpatients, and with a multi-stakeholder following. A network used for raising disease awareness and sharing as much up to date information. Carole also advocates for patientcentricity, especially patient engagement best practices and the need for patients to be included within research at early development / preclinical phases. She recognises the need to help educate patients about clinical trials and the reason why they should get involved. Recently as a Patient, and with FibroFlutters, was a team member of an initiative to create: ‘How-To guide’. How to implement Patient Engagement into Early Development and Preclinical phases with Patients Focused Medicines Development.

ROBERT MITCHELL-THAIN
CEO
Drawn into the world of PBC with his mother's diagnosis in 1994, Robert has, in one way or another, been involved in PBC advocacy since even before the PBC Foundation was founded in 1996. An experienced and powerful patient advocate, Robert's specialist subject is listening to the patient, and using the patient experience to improve the patient experience. An international leader, presenter, innovator, academic, committee member and author on a number of topics, his driver is to ensure the patient voice, and experience, is front and centre of every potential solution to the challenges they face. An agent for change, he has led various campaigns and innovations to improve the PBC patients' quality of life on a multinational stage.